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PatientsLikeMe Review

Depends

Should I use PatientsLikeMe?

PatientsLikeMe reminds visitors that their browser is out of date. - patientslikeme.com

· 3 days ago

Patients join free for peer support, treatment reviews, and data export. Anyone unwilling to trade health data with a research business picks a private tracker or anonymous forums instead.

Confidence

Medium. Based on 40+ public sources; many snippets arrive truncated, so exact ratings and quotes stay unreported.

Ratings

  • Value for money
  • Ease of useNo direct usability evidence in sources.
  • Feature depth
  • Support qualityNo member support evidence in sources.
  • Security posture

Pricing

Not disclosed

ModelNot disclosed
Monthly feesNot disclosed
HardwareNot disclosed

Best for

  • Patients tracking chronic conditions
  • People researching treatment side effects
  • Caregivers comparing medications

Not for

  • Privacy-first patients; this is a data-for-research business
  • Anyone wanting anonymous, unshared health records
  • Clinics hunting for a patient-management system

Gotchas - check before you buy

high

A data mining incident let a third party harvest member profiles.

medium

Free membership is funded by sharing de-identified patient data with partners.

medium

User agreement contains a fees section, so check terms before assuming all access is free.

medium

Glassdoor reviewers report post-acquisition culture decline, a product and support risk.

Pros and cons

Pros

  • Community forums connect patients across many conditions.
  • Members publish treatment reviews and side-effect reports.
  • Members can download their own data.
  • Research partnerships include AstraZeneca and Genome Medical.
  • Android app exists on Google Play.

Cons

  • Homepage nags visitors to update browsers, a neglected-site signal.
  • Business model shares member health data with research partners.
  • A data mining incident exposed member data to a third party.
  • Glassdoor reviewers say new management ruined the culture.
  • Trustpilot shows almost no customer reviews.

Sources & method

- 16 sources - No known vulnerabilities found in the sources reviewed; privacy policies are published and data sharing is core to the model.

official x5review x3security x2news x6
  • Third-party data mining incident, A third party scraped member data through the platform, according to Healthcare IT News coverage.

Key stats

  • Value for money: 3/5

    Rating

  • Not disclosed

    Starting price

  • 16

    Sources

  • Analyzed

  • Value for money: 3/5. Free to join; your data pays the bill.
  • Ease of use. No direct usability evidence in sources.
  • Feature depth: 3/5. Communities, treatment reviews, data export; no clinical tools.
  • Support quality. No member support evidence in sources.
  • Security posture: 2/5. Detailed policies, but a data mining incident happened.
  • $153M Funding raised Cumulative, per GetLatka
  • $4.8M Revenue 2021, per GetLatka

Pricing

Not disclosed

Security

No known vulnerabilities found in the sources reviewed; privacy policies are published and data sharing is core to the model.

  • Third-party data mining incidentA third party scraped member data through the platform, according to Healthcare IT News coverage.⁴

What users say

Employee reviews criticize new management, Reddit patients still cite the site for medication questions, and Trustpilot shows almost no reviews.

Companies that use it

  • AstraZeneca11
  • Genome Medical12
  • Quest Diagnostics13
Full analysis

Based on 40+ public sources; many snippets arrive truncated, so exact ratings and quotes stay unreported.

Free patient network for peer support and treatment data; the trade is your health data feeding research partners.

Methodology

Based on 40+ public sources; many snippets arrive truncated, so exact ratings and quotes stay unreported.

Read how a report is made.

Sources

  1. Glassdoor employee review: new managementglassdoor.sg
    review
  2. Trustpilot reviews of PatientsLikeMeuk.trustpilot.com
    review
  3. Reddit r/diabetes_t2 medication threadreddit.com
    review
  4. Data mining incident coveragehealthcareitnews.com
    news
  5. Openness philosophypatientslikeme.com
    official
  6. Privacy policypatientslikeme.com
    security
  7. Product security pagepatientslikeme.com
    security
  8. User agreementpatientslikeme.com
    official
  9. Community forumpatientslikeme.com
    official
  10. Data download support articlesupport.patientslikeme.com
    official
  11. AstraZeneca collaboration press releaseastrazeneca.com
    news
  12. Genome Medical partnershipgenomemedical.com
    news
  13. Quest Diagnostics lupus study case studyappliedclinicaltrialsonline.com
    news
  14. GetLatka revenue and funding datagetlatka.com
    news
  15. Google Play app listingplay.google.com
    official
  16. Smart Patients competitor comparisoncbinsights.com
    news

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